Weekly Spotlight - 19.12.24

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Sickle Cell Alliance Formed to Accelerate Innovation and Investment in Research

The Sickle Cell Alliance, a new partnership between Imperial College Healthcare NHS Trust and Imperial College London, aims to accelerate research and improve patient outcomes through education, innovation, and inclusivity. Spearheaded by Dr. Steven Okoli and Professor Julie Makani, the Alliance brings together clinicians, researchers, and patient advocates to enhance funding, support, and care for the global sickle cell community. With a focus on addressing unmet clinical needs, the initiative will drive collaboration and industry engagement to overcome funding limitations and improve treatments for sickle cell disease.

Latest News

New Drug Etavopivat Shows Promise in Reducing VOCs, Boosting Haemoglobin in SCD Patients

A new study shows that the drug etavopivat can reduce the rate of vaso-occlusive crises (VOCs) and increase haemoglobin levels in people with sickle cell disease, offering a potential new treatment option to manage symptoms and improve quality of life.

Latest Advances and Updates in Sickle Cell Care for 2024 Explained by Dr. Steven Fein

Dr. Steven Fein discusses recent updates and advancements in the treatment and management of sickle cell disease, including new medications, gene therapies, and ongoing clinical trials that offer hope for improved patient outcomes. These developments aim to reduce symptoms and enhance the quality of life for those with the condition.

Allogenic Stem Cell Transplant Shows Superiority Over Standard Care in Sickle Cell Anemia Patients

A study compares the outcomes of allogeneic hematopoietic stem cell transplantation (alloSCT) and standard of care (SoC) for patients with sickle cell anemia. The results show that alloSCT significantly improves survival and reduces complications compared to SoC, making it a potentially superior treatment option for managing the disease.

Sickle Cell Patient Defies Odds, Lives Independently Despite Health Challenges

A woman with sickle cell disease shares her journey of living independently despite the challenges of her condition, highlighting her resilience and determination to manage her health and pursue her goals. Her story inspires others to take control of their lives and seek support when needed.