Sickle Cell Disease Insights

Exclusive Guide for Understanding Sickle Cell, Recent News & Research Breakthroughs

Author

Liam Ball
January 23, 2025 • Estimated Reading Time: 1 minute

Exclusive Report

Understanding Sickle Cell Disease: A Guide for Patients

In collaboration with AllMyHealth, the platform that supports rare disease communities, we have produced a detailed guide on Sickle Cell Disease (SCD). This resource provides practical advice for managing SCD and highlights key areas such as:

- What is SCD?: Understanding the basics.
- Symptoms and Complications: Recognizing common signs.
- Treatment Options: Exploring your options.
- Daily Living Tips: Managing life with SCD.
- Global Efforts: Initiatives and research advancements.

Empower yourself with essential knowledge to manage SCD effectively and share this guide with others to spread awareness!

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/report

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Top Stories

Study Reveals Why Sickle Cell Patients Face Cognitive Issues

Researchers have identified a link between cognitive problems in sickle cell disease patients and the disruption of blood flow to the brain, which can lead to damage and impaired brain function. This study helps understand why many people with sickle cell disease experience cognitive issues.

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MRI Reveals Unexpected Brain Changes in Sickle Cell Patients

Researchers using MRI scans have discovered unexpected changes in the brains of people with sickle cell disease, which could help explain cognitive and behavioral issues associated with the condition. These findings may lead to new treatments and better management of sickle cell disease.

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New Program Aims to Support People with Sickle Cell in Sub-Saharan Africa

A new program aims to improve the lives of people living with sickle cell disease in sub-Saharan Africa by providing better healthcare access and support. The initiative focuses on enhancing diagnosis, treatment, and overall care for those affected by the condition.

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New Study Shows Promise of Mitapivat in Treating Sickle Cell Patients

The Rise-Up study shows that mitapivat is effective and safe for treating sickle cell disease, improving hemoglobin levels and reducing symptoms. This new treatment could offer a promising option for managing the condition.

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Latest Research

Reddy (2025) conducted a study comparing two treatments for severe pain episodes in children with sickle cell disease (SCD). The trial involved children aged 3 to 15 years who experienced intense pain during these episodes. Participants were treated with either intravenous ketorolac or morphine, and their pain levels were monitored over 12 hours.

Both treatments showed similar effectiveness in reducing pain, with no major differences in side effects. The study concluded that ketorolac could be a safe and effective alternative to morphine for managing pain in children with SCD, offering more treatment options for families and caregivers.