Sickle Cell Disease Insights

Understanding sickle cell disease: a guide for patients

January 30, 2025 • Estimated Reading Time: 1 minute

Exclusive Report

Understanding sickle cell disease: a guide for patients

Last week we introduced an essential guide created with AllMyHealth to help individuals and families better understand sickle cell. If you missed it, we're bringing it back this week to ensure you have access to this valuable resource.

Now available in audio format, you can read or listen at your convenience. Stay informed, empowered, and connected. Share with those who may benefit!

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/report

Report Thumbnail

Top Stories

UCSF Launches CRISPR Trial for Sickle Cell

Researchers are using CRISPR to correct the genetic mutation causing SCD by editing patients' own blood stem cells, potentially eliminating the need for a donor transplant. This approach could provide a safer alternative to current treatments.

Read More →

Biden-Harris Administration Expands SCD Treatment Access

The Biden-Harris Administration is increasing access to new treatments for sickle cell disease by partnering with drug manufacturers to make gene therapies more affordable and available to those on Medicaid. This model aims to improve health outcomes and reduce costs.

Read More →

Stem Cell Transplants Feasible for Young SCD Patients

Stem cell transplants can cure sickle cell disease by replacing faulty stem cells with healthy ones, offering improved health outcomes for those who undergo the procedure successfully.

Read More →

Sickle Cell Disease Advisory Committee Meeting

Experts discuss SCD research priorities, focusing on gene therapies and organ health impacts.

Read More →

Latest Research

A recent study led by Nangunia et al. (2025) has explored how sickle cell disease (SCD) affects healthcare workers' knowledge and the availability of resources for managing the condition. The researchers assessed the understanding of SCD among medical staff and examined the accessibility of necessary tools and information for effective patient care. They discovered that many healthcare workers lacked sufficient knowledge about SCD, and there was a notable shortage of essential resources in medical facilities.

These findings suggest that individuals with SCD may not be receiving optimal care due to gaps in healthcare providers' knowledge and limited resource availability. Addressing these issues is crucial for improving the quality of care for SCD patients. Enhancing training programs for healthcare workers and ensuring that medical facilities are well-equipped with the necessary resources can lead to better management of SCD and improved patient outcomes.