Sickle Cell Disease Insights

This week's must-know community updates, latest research & events

New Report: Introduction to Cell Therapy

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Top Stories

Ethics of Gene Therapy for Sickle Cell
Gene therapy for SCD raises concerns about accessibility and equity due to high costs and potential unequal access to treatment. It aims to address the genetic cause of SCD, but its affordability and fairness in distribution remain significant issues.
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American Society of Gene & Cell Therapy’s Empowering Patients 2025 Summit Recap
Read why patients and caregivers are vital partners in research, clinical trial awareness empowers decision-making, regulators value patient voices, and addressing manufacturing hurdles is crucial for access.
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Gene Therapy Cures Young Man's Sickle Cell
Sebastien Beauzile, treated with Lyfgenia, is now pain-free after a gene therapy that corrected his sickle cell condition by modifying his own blood stem cells.
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Clinical Trials

Community News

Global Alliance of Sickle Cell Disease OrganizationsGlobal Alliance of Sickle Cell Disease OrganizationsMar 24, 2025

From its discovery over a century ago to the cutting-edge treatments of today, Sickle Cell Disease has come a long way.

Join us as we explore the fascinating history and promising future of SCD management!

Global Alliance of Sickle Cell Disease Organizations Post
SCD Association of America, IncSCD Association of America, IncMar 21, 2025

Hematologists/oncologists, pediatricians, primary care physicians and other health care providers are encouraged to participate in "A Rare Day in Community Hematology Clinic," a new Medscape activity designed to help providers learn how to better recognize specific characteristics of classic hematological disorders and optimally and equitably care for these patients. Learn more: https://buff.ly/KZncx9b

SCD Association of America, Inc Post
Sickle Cell Disease FoundationSickle Cell Disease FoundationMar 19, 2025

Approved treatments for Sickle Cell Disease.

Sickle cell disease (SCD) may be cured in some individuals by a stem cell transplant. There also are several approved therapies to help manage the condition and its related complications. Some of the approved therapies used to treat to treat the disease are summarized below.

*Please note these therapies are not cures but have the ability to cure SCD*

Read more here:

https://sicklecellanemianews.com/approved-treatments-for-sickle-cell-disease/

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Tratamientos aprobados para la enfermedad de células falciformes.

La enfermedad de células falciformes (SCD) puede curarse en algunos individuos mediante un trasplante de células madre. También hay varias terapias aprobadas para ayudar a controlar la condición y sus complicaciones relacionadas. Algunas de las terapias aprobadas utilizadas para tratar la enfermedad se resumen a continuación.

*Tenga en cuenta que estas terapias no son curas, pero tienen la capacidad de curar el SCD*

Lea más aquí:

https://sicklecellanemianews.com/approved-treatments-for-sickle-cell-disease/

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Upcoming Events

MAR
27
Camp Crescent Moon Info Sickle Cell Disease Foundation • Ontario, CA    In Person
OCT
15
SCDAA Annual National Convention SCD Association of America, Inc • Hanover, MD    In Person