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Sickle Cell Disease Insights
New Report Release: A Guide to Nutrition for Patients with Sickle Cell Disease
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Exclusive ReportNew Report Release: A Guide to Nutrition for Patients with Sickle Cell Disease We're excited to share our latest in-depth report developed in collaboration with AllMyHealth. This guide provides practical insights on how nutrition plays a vital role in managing sickle cell disease. View the Full ReportThe report is available for free online on the AllMyHealth website. www.allmyhealth.io/reports ![]() | ||||||||||||||||
Top StoriesCharleston Center Offers Gene Therapy for SCDMUSC's new center provides gene therapy and other advanced treatments for sickle cell disease patients in South Carolina, making care more accessible. Read More →Reni-cel Shows Positive Results in SCD TrialsPatients with sickle cell disease experienced fewer painful episodes and improved blood health after receiving reni-cel, a gene-edited treatment. Read More →High-cost Sickle Cell Gene Therapies Challenge InsurersExpensive gene therapies for Sickle Cell Disease are prompting insurers and Medicaid to explore new payment models to make these life-changing treatments more accessible. Read More → | ||||||||||||||||
Latest ResearchIn a recent study, Freitas et al. (2025) explored the critical role of nurses in caring for children with Sickle Cell Anemia (SCA) in hospitals. The review, which included 17 articles, highlighted that nurses are essential in providing comprehensive care that extends beyond the child to include their families. Nurses are involved in managing care, educating patients and families about the disease, and ensuring the safety and quality of care within the healthcare team. | ||||||||||||||||
Community News
Living with a chronic illness can be challenging, but nurturing a loving relationship doesn't have to be.
Congratulations! TaLana Hughes, SCDAA board member and executive director of the Sickle Cell Disease Association of Illinois, has been named one of the 2025 Chicago Defender Women of Excellence Honorees! Kudos to TaLana for the incredible work she does in her community and on behalf of sickle cell warriors everywhere.
The countdown is on—just one month until Hill Day at the SCD Policy Forum! Time to prepare and make your voices heard. | ||||||||||||||||
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