Sickle Cell Disease Insights

Recent research has focused on patients with sickle cell...

April 09, 2025 • Estimated Reading Time: 1 minute

Latest Research

Recent research has focused on patients with sickle cell anemia, particularly those with homozygous sickle cell disease (HbSS) or sickle beta zero thalassemia. The study aimed to develop a polygenic risk score for persistent albuminuria, a condition indicating kidney issues. This could help identify individuals at higher risk of kidney problems related to sickle cell anemia.

By developing tools to predict kidney issues, researchers can improve management and care for those affected. This work contributes to ongoing efforts to address health challenges faced by individuals with sickle cell disease, impacting multiple organ systems and quality of life (Zahr, 2025).

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

Applying Directly Observed Therapy to Hydroxyurea to Realize Effectiveness

A Stress and Pain Self-management m-Health App for Adult Outpatients With Sickle Cell Disease

Blood Sampling for Research Related to Sickle Cell Disease

Natural History of Sickle Cell Disease

View the full list of clinical trials →

Community News

Global Alliance of Sickle Cell Disease OrganizationsApr 06, 2025

The Sickle Cell Community Mourns the Passing of Professor Graham Roger Serjeant

(1940 - 2025)

The Global Alliance of Sickle Cell Disease Organizations (GASCDO) is deeply saddened by the passing of Professor Graham Roger Serjeant, a renowned champion for Sickle Cell Disease (SCD) awareness, research, and advocacy.

A Legacy of Dedication and Expertise

Professor Serjeant's tireless efforts and groundbreaking work have had a profound impact on the SCD community worldwide. His research and advocacy efforts took him to many countries, including Jamaica, Brazil, Greece, Nigeria, Uganda, Canada, and beyond.

A Lasting Impact

- Sickle Cell Trust (Jamaica): Founded by Professor Serjeant in 1986, this organization has provided essential healthcare services, educational programs, and screening initiatives to countless individuals.

- Advancing Patient Care: His work has led to significant improvements in patient care, inspiring a new generation of healthcare professionals and advocates.

We remember Professor Serjeant's dedication, expertise, and compassion. His passing leaves a void in our community, but his legacy will continue to guide us. We honor his memory by continuing to advocate for better care, treatment, and support for all living with SCD.

Rest in Peace, Professor Serjeant

Your work will never be forgotten. You will be deeply missed, but your legacy will live on in the countless lives you touched. The Sickle Cell Community will forever be grateful for your contributions to our community.

Sickle Cell 101Apr 07, 2025

Traveling with #sicklecell disease? Here's my must-have flight essentials. What do you fly with? Drop your go-to items below!

#sicklecell101

SCD Association of America, IncApr 01, 2025

April is National Minority Health Month. Sickle cell disease affects approximately 100,000 Americans, most of whom belong to a racial or ethnic minority community. SCDAA is dedicated to raising awareness about the unique issues faced by our minority populations, including barriers to care and resource gaps. Learn more: https://buff.ly/F0kRNor#NationalMinorityHealthMonth