Sickle Cell Disease Insights

This week's must-know community updates, latest research & events

Top Stories

Latest Research

A recent study focuses on developing low-cost techniques for detecting sickle cell disease and β-thalassemia. This research aims to identify carriers or those with the disease, particularly those with hemoglobin S (HbS) and other variants. The emphasis on low-cost detection methods highlights the need for accessible diagnostic tools, especially in resource-limited regions.

By developing such techniques, researchers hope to improve early detection and management of these conditions, potentially leading to better health outcomes. This approach aligns with broader efforts to enhance global health equity by making essential medical services more accessible to diverse populations (Shrestha et al., 2025).

Clinical Trials

Community News

SCD Association of America, IncSCD Association of America, IncApr 01, 2025

April is National Minority Health Month. Sickle cell disease affects approximately 100,000 Americans, most of whom belong to a racial or ethnic minority community. SCDAA is dedicated to raising awareness about the unique issues faced by our minority populations, including barriers to care and resource gaps. Learn more: https://buff.ly/F0kRNor#NationalMinorityHealthMonth

SCD Association of America, Inc Post
Global Alliance of Sickle Cell Disease OrganizationsGlobal Alliance of Sickle Cell Disease OrganizationsMar 26, 2025

Managing Enuresis(Bed wetting) in Sickle Cell Disease(SCD)

Enuresis (bedwetting) affects millions of people worldwide.

Let's break the silence and stigma surrounding this common condition.

Read our latest post to learn more, find support, and discover ways to manage enuresis.

Global Alliance of Sickle Cell Disease Organizations Post
Sickle Cell Disease FoundationSickle Cell Disease FoundationMar 27, 2025

Bone marrow transplant in teen years may lower stroke risk in SCD.

Undergoing a bone marrow transplant during adolescence may reduce the risk of stroke in people with sickle cell disease (SCD), while waiting until adulthood is unlikely to mitigate this risk, a mouse study suggests.

Read more here:

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El trasplante de médula ósea en la adolescencia puede reducir el riesgo de accidente cerebrovascular en la SCD.

Someterse a un trasplante de médula ósea durante la adolescencia puede reducir el riesgo de accidente cerebrovascular en personas con enfermedad de células falciformes (SCD), mientras se espera hasta que sea poco probable que la edad adulta mitigue este riesgo, sugiere un estudio de ratones.

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